Marcela was here in September and we did a photo shoot for Gunda Hafner with @Piotropacki. I think I talked about this in a previous blog. It was a fun day and we captured some amazing pictures for the launch of Gunda’s new collection. Marcela, known as ‘The Journey of a Brave Woman’ on Instagram, came to Europe to give a talk at the Rewalk conference in Germany and we decided that she should come a few days earlier so she could spend time with me and get to know London as my house is accessible. It was so fun to have her around. I could show her around and it looks like we are old friends and not only Insta followers. On the last day we decided to sit and film for you guys about the Rewalk and her experience ( I launched this film last month – Check it out) and we also decided to talk about fashion and representation. I put a film together of this talk that we did specially for you.
Yesterday was Marcela’s birthday so I would like to share this blog to congratulation her on that. Marcela, you are doing great work. Keep being real, keep being your authentic self and inspiring others. We love you hun.
I really hope you like it and please share for someone you think will like it and leave your comments, that are always welcome.
This week was the International Disability Day and I decided to fly to celebrate this important date. It was a way to call the attention to
the subject and to prove that we are capable of different and challenging things.
It was a dream, something I had never done before and I always wished I could do. I strongly believe that when we want a thing so much we give the main idea to the universe and it was what I did, I started to talk with people and say it was something I would like to do, so it happened.
We chose to fly at end of the day where we could see the sunset what was even more magical. Capão da Canoa my city is a big city now and it was wonderful to see the city from that point of view, with all its buildings and the amazing beach. I wonder how it would be to fly at night time.
The interesting thing about this adventure is I have a friend in wheelchair that also lives here and he was there to see me, he said when we mey at first one day he would do, when i started to get ready he said, I will do it tomorrow, and when I finished my expereince he was ready to have his own. He was really up for it seeing another wheelchair user doing it made him so confident that he went for it. In less than 10 min his wife and sister in law were at the beach to see him fly. It is why we need more adaptive sport or things to do. Social projects are of an amazing importance in these cases to arrange things for us to try and see what we really can do or what we like to do.
Thanks to Tutyboal, Ademir from Freedom Flight for arranging to me, Tuti and his team looked after me so well. It was one of the best experiences I have had. His IG is @freedom_fly_paramotor
I also must to say thanks to my mum for filming the vlog, to Lawson Filho for the amazing pictures, his IG is @lawsonfilhofoto and Loja Nara Nubia for the outfit of the challenge, her shop is amazing with an enormous variety of clothes, check her out on IG as @lojanaranubia.
The actually flight was around 15 min, looks like it is longer. Intook my phone with me and we kissed the sky. It will be something for sure I will try again. I hope I could inspire you to try it, if not it something similar but will take you out of your comfort zone. I am sure you can live a more fulfilled life find what make you happier and more complete.
I will make a vlog soon and will leave you guys with this amazing view of Capāo da Canoa also I will add more pictures on my Gallery here on my website.
I don’t know if you saw my open letter, but I say: “There are people like me all over the world growing up without any reference to their part or place in society, without seeing others, like themselves, living a full and fulfilled life. Still, it is as though have a disability is to be invisible- to have the full spectrum of who you are and who could potentially became, ignored.” Because of that Serena and I have been working together this last month to improve SCI awareness.
She is an illustrator and painted me so we could spread the word about inclusion. It talks deep to her heart as she lives with this on a daily basis through her husband that likewise uses a wheelchair. It was an honour for me as I am a big admirer of her work. If you see it on Instagram you will be mesmerised with the quality and diversity of her drawings. Her handle is the_miss-s that a more personal one there she also shares her experience on inclusion with her husband.
They travel around the world showing accessibility and spreading awareness of inclusion. Her other account is serenasartto that is mainly her professional work. We connected over our mutual belief in inclusivity and fashion.
What can I say? I had the honour to be portrayed by her to make people aware about disability and how we can live our lives to the full. Her passion and talent came from the inspiration of music, interesting people and people with a great message. I couldn’t wait to share with you the picture. Let me know if you like the illustration and what you like most about it. All comments are welcome.
I strongly suggest for you to follow her on Instagram or to order your custom illustration on www.serenasart.com
Wouldn’t be great if in all aspects of life you were portrayed some how?
Sometimes the combination of being in a wheelchair and loving fashion can be a bit tricky, simply because not all clothing items are accommodating. Simple tasks can be extremely difficult when you’re wearing certain things, which can make shopping tremendously frustrating. Just imagine finding clothing that captures your heart but knowing it doesn’t suit wheelchair users!
So, to find a brand that produces awesome items that are also perfect for wheelchair users is so exciting. One that I’ve managed to discover is Caroline London UK. Back when I was at the London Organic event, they were there trying to give their brand some exposure. I instantly became fascinated by their vision going forward; it’s a completely unique idea. Since then, they send me their terrific items through the post for me to try out.
Essentially, their ethos is to allow people to mix and match, so you can design the look which you’ll love the most. But, the hallmark of their brand is a jump suit which utilizes a zipper mechanism down the middle. It’s split into two parts – the bottom half and the top half – which means you can mix and match between the two.
You can either keep the trouser aspect and switch out the top, or vice versa. In terms of being inclusive towards wheelchair users, the outfit is simple to adorn and allows you to unzip as and when you need to. For instance, during the winter months when the weather is freezing cold, you can go to the toilet without having to remove the whole outfit. It’s so convenient!
Moreover, for those that are severely disabled, such as individuals that are quadriplegic, it’s so much easier to get dressed when there’s a zipper straight down the middle. A wonderful fashion brand that creates outstanding items that look gorgeous, while priding themselves on being inclusive towards everyone at the same time is so refreshing.
Out of all the brands that I choose to represent, Caroline London UK is one of those that I have absolute belief in. I love the quality of their items and the flexibility in the way you select your outfit. Oh, and the range of choice is excellent too, because you’re empowered to play around with casual and luxury items, so you can source an outfit for any occasion.
I’d highly recommend checking out their brand, which you can do by heading to their website – carolinelondon.co.uk.